Hi...

This is just a small part of my story that i like to share with you....

I was diagnosed in 1988 with Progessive Peripheral Polyneuropathy of unknown Etiology ,Idiopathic.

The tingling and terrible burning pain started in my right hand finger tips spread to the left hand up to both shoulders down to both feet and up to the thigh....It felt like someone injected airplane fuel in my arms and lit up a match.

This neuropathy hit me like a cannon ball ....Legs turned into rubber that i couldn't walk or stand, my arms were numb and heavy as if full of lead. i couldn't use my hands, couldn't eat, think, prefuse sweating, was losing weight and didn't know what to do....

After spending 3 months in three different hospitals and doing many procedures, Mri's, CAT scanning, EMG & nerve conduction,blood,TB,spinal taps and 2 sural nerve biopsies etc.

Doctors couldn't find anything in my body that was causing this neuropathy and had me shipped out to this rehab center where i spent 7 weeks learning how to walk and use my hands again. It is a must to take all this one day at a time and hope for best.....

I take my Neurontin 600x4 mg. and pamelor 75mg Daily and of course Vitamin B-12 Caps...This has helped some of the pain,but the burning never goes away.

Note that i have Idiopathic neuropathy and the medications that help me may not help everyone in the same situation......Let us all stick together like crazy glue and fight the disease that can shout with pain and terrible burning.

You can also fight this disease by joining The Neuropathy Association,they there fighing for you.
http://prv-groups.aol.com/livinwneuropathy/groups_home.adp

(Web Servant Note: Also, go to The Neuropathy Association).

joe
Polyjoee@aol.com